Vitiligo gi maramda samlapa khara

Vitiligo, samna manipurida,”Angouba pakpa” hairaga khangnaba (ahorai hairagasu khangnei),hairiba laina ashi, miyoibagi punshigi tangkak amada hekta ,ekhang khanghoudana,hakchangee unshada natraga mapram singda hekta ,maram ekhang khanghaoudana,ngouthorakpa laina makhalamani.Laina ashi ayambana tapna tapna ,natraga karigumbada khara thuna  thangnaba maphamsingda natraga atopa maphamsingda sandorakpa yai.

Laina ashi,unshada natraga mapramsingda yaoba” Melanocyte” haiba cell (khwaidagi pikpa hakchang kayat semlakpagi marudu ni) makhal aduna sontharakpa natraga sirakpadagi ,kuchu oihanlaknaba machak ” melanin “ machak adu sunglakpa natraga puthorakpa ngamdabadagi oihanlakpani.

Vitiligo ashi meyoiba gi meihourolgi matamdagi thengnarakle haiba gee record sing lei.Vitiligo hairiba wahei ashi” Celsus”(Roman physician) na ehan hana ahanba century gi matamda sijanaramkhi.Wahei ashi makti,Latin gi wahei “Vitium” haibadi ngouthokpa (blemish) tagi makha tarakpa waheini.2200 BC, daAushooryan (Iran gi ariba lairik) ta ashigumba laiwong gi maramda eramba gi record lei.1400 BC da India gi ariba lairik “Atharva Veda” da,224-544 BC da Buddhist ki ariba lairik “Vinay Pitak “ ta,ashigumba laina makhal asi neinarami.Hindu singi ariba hakselgi lairik “Charaka  Samhita” 800 BC dasu laina asigi maramda erami.Holy Bible(Old testament) ta “Zora`at”,Arabic ta “Bohak”, “Baras” ,”Alabaras” haibana chingba lainasigi maramda eduna leirami.

Laina makal ashi,unshagi lainasingi manungda adum khara toina thengnaba laina makhal amani.Chaorakna meyoi chamagi manungda  1-3 % di laina ashina nai haina panei.Nupa amadi nupi anigi marakta chang manana thengnei.Chahi nouribasingdagi ahal oiraba phaoba laina ashina nahanli ,adubu chahi 20 gi makhadana khara hena yamna naba thengnei.

Adubu Khangjangadaba di unshada angouba natraga ngouthorakpa khudinmak “Vitiligo” natte.Mashiga haiphet manaba,karigumbada  khandokpa  luna thokpa leina kaya amasu leiri.

Vitiligo hairiba laina ashi karidagi karamhaina oihanlakpano haibagi chapchaba maram amadi,houjiki medical science na khangdari, adubu,leina shibu oihanlakpani haibagi thajanaba  wapham kaya amadi lei.Houjiki oina khwai dagi yanaraba maramdi Vitiligo asi laina makhal amakhakna oihanlakakpa natte,laina makhal khara punsanlaga,angouba pakpa haibadu oihanlakpani.Medical science ki waheida hairagana “Syndrom of hetrogenous patho physiological disorder presenting with depigmentation” haibaduni.

Vitiligo ashi gi oihanlakpagi khwaidagi henna yanaraba maru oiba maram natraga hakchang gi ashoibadi “Autoimmune disorder with a genetic background” haibasini.Atopa  oiramgani thajanariba hakchangi ashoiba singdi :Neuronal dysregulation”. “Cytotoxic  to various toxic substances”, “Oxidative stress” ,”Melanocytorragy” na ching bani.

Hiramsig siga  loinana atopa yamna maru oiba, Vitiligo bu henna saphongbada mathou hapa yaba  maram singdi ,”pukning  thawai nungaitaba”,atopa autoimmune gi laina sing”,”hakchangda sokpa panba na ching ba”,”mironba”,”nungsagi meisana kahatpa/chakthekpa”,”mahikna infection sing touba”,”toxic  oiba compound sing hakchangda tungsanba” na chingbani.

Lainasi gi hiram da,apota lamai kayada(website sigi),hiramsida  khang heiraba doctors, scientist,therapist singna neinaba kaya ama thengna birak khigani.Neinabiyu amadi khanghjanbiyu.

Vitiligo na meyoi adugi hakchangda natraga kayatsingda,nungaihandaba natraga hakchangi phibamda nahanba ,sokhanba,soinaihanba,,punshi telhanbana chingba amata thokhande adubu khwaidagi nungaitriba phibham natraga hiramdi “ Vitiligo na anabadugi pukning wakhlda,nungaihandaba,thamoi sokhanba,mirakta tinaningdaba,wakhal pikthabana chingba thokhanduna,hingubagi kari kanarugabano haina khalhanba phaoba yaorakpa yai amadi yaoee.Sammna hairabada  “meyoiba dugi quality of life” ta chaona cheitheng pi.Mashina  nariba yumpandriba,pangadouraba,panba nouriba  naha oiriba singdana amuka hena achouba cheitheng pi.

Samaj na leinasigi maramda munna khangdabadagee,hangoiba,kijaba,sokkna samnanigdaba,tukatchabana thina kaya toubadagi henna,tathi takoina toubiba phaoba yaodaba natta.Mashi na maram oiraga nariba moiduna samaj gi maraktagi lapthokningba,lapthok khiba,amadi mayum makei pandriba leisabi Pakhang shingna mayum makei panbagi khongthang da apanba,ninghannaba thoktaba natte.Amuka hena nungaitriba waphamdi,Vitiligo bu “Leporosy” ni haina yamna lanna thajanabagi samajsida khangdaba,lana thajanaba meiyoi kaya ama leiri.Amaromda hairagadi,magumba apangba khangdaba  miyoi singduni henna tamthiraba yeknabadi.Maram di Vitiligo di,mahikna thokhanba natte.Sokna samnabadi lairadana,leina lektuna loinaba,unsha machet settuna charabasu(leku,chao haiba di nate) lounaba wapham suklei  leite.Nupa nupi yumbanlonda akaiba pide.Vitiligo di Leprosy  ga hiram amatada mari leinade.Leprosy di sokpa panbada khangdaba,unsha khuijanhanba natraga thagathanba amadi  tu,samm na chingba kenkhi.Vitiligo di unsha ngouthorak pa natana,unsa thagatpa,khuijanba,pangthaba sokpaa panba khandaba amadi  tu saam kenba toude.Unsagi natraga mapramgi phibhamda machu ngouthorakpa nattana atopa akaiba amata yaode.Adubo Vitiligo na naraba meyoi kharada atopa nung gi oiba laina khara haibadi, Diabetis mellitus,thyroid ki laina,auto immune diseases,saamjabi,anaemia na chingba loinaba yaoee.

Laibak thibadi,Vitiligo mapung phana phahanba ngamdari.Layengnabagi upai kaya ama leire.Kaya ama phakhare,phahankhare.Kaya amana sungpha phahanba ngamdari.Phakhiba kayadusu matam changna phahanhkiba ngaktni.Phakhiba kaya amna matam kharagi matung da,  amuk hourakpasu yaoee.Houjik phoubagi oinadi chapchaba layeng pathap ama leitri.

Hiramsing  sidagi,praja mipum khudinmakta,Vitiligo gi leinasina ,unsagi phibhamda yengbada chaang naidaba,chatnabigi waphamda hairagadi khara phajadaba phibhamdagi hena akaiba leite, habasi khanghanba yamna darkar oi hainingee.Vitiligo na naraba singbu,tokhai biroidabani,hangoibiroidabani.Makhoibu hangoiba inthokpiba toubiroi- dabani.Samna hairabada,naha oiriba misak amana nganna samda pok hourakpa matamda,yengbada khara nungaiteda naha oina haibadagi hena kana nasu karisu hainade.Adu gumna Vitiligo su khandopipham thokee.

Yamana thamoi sokpa waphamdudi,Vitiligo na naraba singna amadi mahaki  naknaba meyoi dana khangei.Hiram sida,laina sibu layengluba unshagi doctor amada phaokhiba khara panjaraba da,Vitiligo anaba singna,doctor eidi hingningdare  kari kanarugabano,siningleda  haiba sing phaoba thengnadaba natte.Leishabi kayana unshagi piklaba kachin amada Vitiligo nabadagi,mayum pandana leiba thengnakhi,mounahana mayum paluraga nupana,manem makuna tukatchana toubibadagi mapamda halaktuna leiba thengnakhare.Naha oiriba singda ,hakchangi phinungi kayatta narabadi amuka hena nupa nupi gi marakta hangoinaba amadi tokhainakhi ba thengnakhare.Nupa sing na mamagi pressure dagi mahaki Vitiligo na naraba mahakna  nungshijana thijaruba nupi khainabiba thengnakhare.Mamana,noujaribi machnupi poraklaga,emangda,ibungo doctor kari tougani haiduna tengthana kappa raba kaya yaokhi.

Ashigumba samajgi oiba natabada thajaba sing  asi lairik  laisu gi gyan watpa meeyoi singdana henna thokanli,adubu yamna gyan leiraba meyoi singi marakta su yaodaba natte.Meepum khuding mak phajaningba,kejaning ba ngaktani.Kannanasu sannao  ama gumna arangba pamba natte.Sannao dabu,arangbi haina nungshina kounabani.Adubu eikhoigi wakhalna,thamoina “Vitiligo is beautiful”,Vitiligo su phajei haina khanba ngamlabadi ,kaya yamna ngungairamgaba.

Hiramsingsi yengluraga,Vitiligo sufferer sing bu social support pibiduna,makhoigi,pukning wakhalgi nungnangba, samajgi mityeng ashi yam na chaona sengdokpa mathou tai.Maduna  Social support system ama leibagi tangai phadabadu khanlubdagi “VITILIGO SOCITY MANIPUR” seamnabagi wakhal lon ashi lakhi.Society ashida common platform  amma semduna,Vitiligo na naraba sing gi marakta,Samaj gi marakta amadi hiramsida mateng pangning ba singa,punna unaduna,tathok  tasin tounaduna,thamoigi oiba,awa ngungai wari lithoknaduna,eesa eesagi khanguba uruba amadi  khangdaba heitaba kaya ama sengdoknabagi yumpham ama sembaduni,Vitiligo  Society  gi pandamdi.Mipumkhuding makpu Vitiligo gi chamlaba lainasigi maram da gyan tahanbaga loinana,Vitiligo na naraba singbu discriminate toudanaba khongthang ,thoudang  pangthokpani.

Society ashi “World Vitiligo Day” 25th June 2019 da houdokli.Society  ashigi masagi oiba dedicated website leijare.Web page singda,Vitiligo gi maram da araiba londa,English,Manipuri  amadi Manipurgi Tribal dialac singda akhang aheisingna phondokpa  wapham kaya thengnabigani.Anabasingna thamoi gi oiba wapham,esaigi hiramsida thengnabirak pa wareng kayasu loujagani amadi,mipum khuding da kairoi haina khanlabadi web ki page sing da saruk yahanjagani.

Website si two ways haibadi,anabasingna hangbirakpa wahang sing,akhang ahei sing dagi paokhum khumnabagi pambei amasu semnaba hotnajagani.Esa esana yabiba myioi sing Society asigi member,sel(paisa) changdana oiba yahangani amadi web site ta membership ki list phangbigani.

Samjanlabada,maru oina Vitiligo sufferer sing gi Social stigma oiriba,wakhal pukning gi nungaitaba gi hiramda mayeng tahanba,amasung  mapung phana muthatnaba hotnabana khwaidagi chaoba platform ama oibata natana,layengbagi hiram kayada wakhal loushing oihanba amadi ei pao phangnababi yumpham ama oinaba angamba thoudang lougani.Society sigi membersing marak  marakta unaduna sakhang  maikhangnabadagi hendoktuta,wahkal lousing phongdoknabagi damkak ,marak marak ta meeting pangthokani.

Colours redefined with dignity.

 

Dr. Karam Lokendro, MD